Last week the U.S. Senate unanimously passed the National Plan to End Parkinson’s Act. The bill is now being sent to President Biden’s desk to be signed into law!
According to the Michael J. Fox foundation, "The National Plan to End Parkinson’s Act is bipartisan, no-cost legislation that will create an advisory council comprising members of federal agencies, people living with Parkinson's, care partners, researchers, clinicians and other experts. Each year, the advisory council will provide a report to Congress and the U.S. Secretary of Health and Human Services that contains evaluations of all federally funded programs related to Parkinson’s. The report will also include recommendations to prevent and cure Parkinson’s, improve health outcomes, limit exposures to environmental risk factors and reduce the financial impact of the disease on patients and the federal government."
Over the last year, the Parkinson’s community, policy advocates, and several organizations have come together to help policymakers understand just how important and life changing this legislation is. The Michael J. Fox foundation has shared that advocates in all 50 states sent more than 70,000 messages to Congress urging their support, and nearly 1,000 advocates joined MJFF to meet directly with their members of Congress. How powerful!
We have all come together to end Parkinson's. All of our efforts has the potential to increase researching funding, improve treatments, improve ways to diagnose PD, create guidelines on how to prevent PD, enhance the publics awareness around PD, and help address health disparities. We will continue to inform you with any new information around this bill.
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