Parkinson's can happen at any age. For some, you may be diagnosed after retirement. For others, you may still be working. Working with PD is possible, but it comes with challenges. Let's discuss everything you need to know about working with PD.
Challenges when working
Bradykinesia and rigidity can make any tasks with fine motor control such as typing or writing difficult. Rigidity may also lead to discomfort and pain that can impact work.
Many experience fatigue, which can make completing tasks or working a full day challenging.
Cognitive changes can impact your ability to concentrate on your work and problem solve difficult.
Anxiety, depression, and apathy can also influence your work.
Speech changes can make communication challenging.
American's with Disability Act
The American's with Disabilities Act (ADA) protects people with disabilities from discrimination in all areas of public life. If you have a physical or mental impairment that substantially limits at least one major life activities, then you are considered to have a disability. Employers must provide "reasonable accommodations" to qualified employees that allow then to do their job. These accommodations must not cause "undue hardship" to the employer.
Accommodations may include changing your hours, allowing you to work remotely, provide technologies or devices to help, and include breaks throughout your day.
You do not have to disclose your diagnosis to work unless you are requesting accommodations. If you do disclose your diagnosis, you do not have to go into detail other than how PD impacts your ability to complete your work tasks. Once you and your employer have agreed upon accommodations, always get it in writing.
Family medical leave act
Working and living in the US allows you to qualify for 12 weeks of unpaid leave for medical related purposes due to the Family Medical Leave Act. This time off can be used on an intermittent basis which is helpful for if you have days that you cannot go into work or if you need longer time off. Eligibility does depend on how long you have been employed, so talk with your employer.
Disability
Short term disability
Short term disability helps cover temporary conditions that prevent an employee from working for a limited time. Examples include surgery, childbirth, or injuries that require medical leave.
Long term disability
Long term disability provides income replacement for an extended period of time for employees who are unable to work due to serious medical conditions. Long term disability can last for months up to retirement age.
Most employers provided disability plans only replace a portion of your income, not the full income.
Social Security Disability Insurance
This type of insurance is available to those who have paid social security taxes but cannot work due to disability. To be eligible, you must have pain social security taxes and worked for a certain number of years, your disability must be expected to last at least 12 months, and your symptoms must be severe enough to meet social security's definition of disability. Impairments include motor and sensory dysfunction (like tremors and rigidity), mobility and dexterity challenges, and cognitive impairment.
You must provide detailed medical records, documentation of any functional limitations, and information regarding your work history.
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